This morning, like last night, Zoé's left eye was still not reacting and all day: she would have lost the use of her eye according to our doctor. 😢 Hearing will be the last thing that will remain, always according to our doctor: reassuring, certainly not, but to us to take advantage of her to talk to her by paying attention to what we say in her presence.
The visit of family support and one of these other extremely painful conversations around the moment Zoé will choose to leave (that she may want to leave in our company, take advantage that we will take a few moments, which she may wait for or we give her our agreement to leave, etc. ). Yes, nothing in my books on this subject - simply the fact of life - and just impossible to hold my tears while I wasn't "prepared" to such a morning conversation.
We are aware of always living the "best of the worst" as I often say..
And an extra dose of morphine at 22 pm tonight while Zoé still hadn't found sleep and seemed to have hurt somewhere without her being able to tell us where.
In short, our days are not easy emotionally.